Monday, June 28, 2010

scariest day of my life

let me start by saying thank GOD that my baby is doing better!!:)

with that being said let me tell u about the scariest day of my life. I wake up Friday morning and Parker (my 4yr old) wasn't acting like himself so i figured he wasn't feeling well. I took his temp it was 95.5 which is a little low but I wasn't to concerned. that is until I tried to pick him up and he was sooooo lethargic that we was like a big noodle so I decided to take his rectal temp (I know I'm a horrible mommy...lol) and it was only 92.1 which is technically hypothermic so we rushed him to the hospital. when we got there the nurse took his temp again and she immediately rushed us to a room and within 10mins there was about 8-10 people in there doing something with my baby. after an hour or so the doctors decided he needed to be transferred to a childrens hospital. he was going to be medivaced out but weather was bad so they sent an ambulance and we proceeded to drive the longest two hours of our lives. as soon as the doctors said we were being transferred to UNC Chapel Hill and being put in ICU I almost burst into tears but I looked at my hubby and he turned ghost white and looked like he was gonna pass out so I knew I had to stay strong and listen to EVERYTHING the doctor was saying. he said my baby was in a "metabolic crisis". for those of u who don't know Parker has a mitochondrial disease called complex 1 definiency. which affects his metabolic system! so the doctors said they didn't know y his temp was sooooo low cuz all the tests they ran came back fine except his blood sugar was a little low. so they think he either had a seizure or it was just that his sugars were off. when we finally arrived at UNC (at 1115pm) Parker was put into ICU for observation. we only had to be there over night because he was starting to act like his normal self again. he is now in a regular room but we will be here a few more days for further testing to determine exactly the cause of his low temp! we have only been here since late Friday night and he has already had a EKG, EEG, and ECHO! we have a MRI and swallow study scheduled for tmrw. will be meeting a bunch of specialists sometime in the couple days to see if anyone can find out the best way to treat out baby!

he gave us and the docs a real scare on Friday but thank the Lord he is going to make a full recovery!

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